Wednesday, October 27, 2010

News: Help the film Proceed and Be Bold!

https://www.kickstarter.com/projects/20kfilms/proceed-and-be-bold-dvd-reprint

Tuesday, October 26, 2010

News: Sickle Cell art

http://sicklecellart.com/

Friday, October 8, 2010

From random to purpose

Until now many of my thougths were random notes fleeting throught my head. I would think hmmmm I should jot that down? Then along came blogging. For many years we 've lived with chroinc illness and everything that comes with it. We don't complain and most often my husband will say that everything is fine. This used to bother me so much. I would ask him how can all be well when we do not know if our son would live or die we did not know if we would pay the next house note or even if there was enough for food?

Then the light bulb went off! Most folks are being polite when they say how are you? They are not asking for your lifes trouble in a 10 minute dissertation of pain and sorrow. For all we know they may just be getting by themselves and have a full plate of problems all their own.

The only thing is you begin to feel lonely within your own trouble. You begin to feel as if you are the single entity suffering these horrible siutations all alone.

It boils down to balance. Mixing the good with the bad helps . We try not to use absolute negatives such as always never etc.
We have to grab each and every happy thing and enjoy it . No matter how small.

I told Marqus a long time ago that there will be folks who care and folks who do not and thats fine.
It is important not to feel defeated when someone doesn't understand or doesn't have time to understand your problems.

The nice thing about a blogg is if someone doesn't have an interest they don't have to read it. It gives the listener a choice . Its not like a face to face or phone to phone conversation. In those situations someone my feel trapped and in an effort not to be rude they listen.

Because of the documentary my thoughts have become more organized. It is a major undertaking to complete a film. Recalling all the past and all the detail can be draining.
But it is long over due . Marqus and those who love and care about us have suffered in silence too long . Now will be our time to spread the word and put voices to silent suffers.

I pray that what we find as we continue this journey can be shared with you.

Thank you for listening Thank you for following these blogs and please share them.

Thursday, October 7, 2010

The Flu and Computers

OK by now you are probably wondering what the two have to do with each other? Well I have the flu. You know Murphy's law . So I cant talk because I will cough as if my lung wants to jump out and my body hurts too much to hold the phone ! My bright idea was to catch up on all the blogs I havent written. LOL!!!!! I just got them working again with a new password etc!!!
These darn computers , numbers , log ons passwords etc friends or worst nightmares!!!
AND as we all know a PC virus can always make you wish you had the FLU!!!!!

So after this labor intensive day of nebulizer treatments, attractive flannel bathrobes, all the hot tea, cough medicine and honey a person can drink I am now ready to blog.

We can only hope that the side effects of the wonderful drug prednisone will keep me awake long enough to write. Hopefully that is all it does??? It has been known to turn me into a NUT Job and to cause me to cook dinner at 3am.

By the way have you also noticed that the minute you lose your voice someone HAS to speak with you or asks questions that require more than a nodd?

Ok so the light at the end of the tunnel is this is day 6 of this illness hopefully no more fevers.
Next Marqus got Tammaflu at his doctors visit today yeah !! He doesnt need this.

Well rest well enjoy your dinners please check out our web site it is growing daily.
We have so much more to share after the conference. And I have so much to blog about .

Thank you for listening have a cup of tea and think for Me:)