Monday, March 7, 2016

Shared post: We love this Chicago-based Sickle Cell Org!

http://hhsca.org/

This Chicago-based, Sickle Cell Disease Organization rocks!! We just met them this past weekend and we love them and their message and outreach.

Shared Post: Stop misunderstanding and mismanagement of Sickle Cell Disease

https://www.change.org/p/stop-misunderstanding-and-mismanagement-of-sickle-cell-disease?utm_campaign=share_button_modal&utm_medium=facebook&utm_source=share_petition

How Apple Sidesteps Billions in Global Taxes

Read this, and ask yourself why the state of IL has to cut public aid funding for people like Marqus who suffer from a horrific, debilitating disease like Sickle Cell Disease, while companies like Apple can easily evade paying millions of dollars in taxes. Check yourself, Apple, because you're in the wrong. http://www.nytimes.com/2012/04/29/business/apples-tax-strategy-aims-at-low-tax-states-and-nations.html?_r=2&hp

New Book Offers Hope and Helpful Advice for Patients with Sickle Cell Disease

From Emory University's Woodruff Health Sciences Center. "New Book Offers Hope and Helpful Advice for Patients with Sickle Cell Disease." http://shared.web.emory.edu/whsc/news/releases/2011/06/new-book-offers-hope-and-helpful-advice-for-patients-with-sickle-cell-disease.html

Wednesday, March 2, 2016

Politics on the Mind

Politics may not be in the fore front of everyone's mind. Don't
be fooled by the grand standing and what the media shows us. Keep in mind unless one of these politicians experienced a life altering
Experience from illness they have no idea nor due they care.

Look at the senator that had a stroke,lots of Press coverage when he walks the Capital stairs to go back to work.
I will ask how many of our warriors had
State of the art rehab?
How many of our warriors are offered
Speech therapy, occupational therapy,
Hippo therapy, rehab so stellar they can walk up those stairs.?
After Marqus severe seizures we did the rehab.

Politicians set our laws supposedly to reflect the wishes of the people.

We are very busy holding down our responsibilities all while keeping our warriors here BUT take a minute and ask if the folks we vote for will make any difference.

It's on us to speak up and speak out.

My phone rang and they asked if I had questions for a local candidate. Of course I said yes ! Guess what they couldn't answer any of them instead I received the typical cookie cutter answers.

I'm still waiting to actually hear something professional from
our candidates.
I have heard the irrelevant, hateful nonsense that our kids would be sent to the principal 's office for.

Be sure to vote no matter what vote.
Ask questions anytime you get a chance and see if you get
answers.
No government is perfect no government will fully take care of
anyone but they shouldn't make our lives worse with infighting and nonsense.

I do realize that many folks also are not grateful for their
next sunrise because theirs it's not in question. - Mama Fran