Home Sweet Home

Its always a relief when another sickle episode is over.

While Marqus is in the hospital it seems like life passes him by.

This time my husband was able to go to school for him.

He always appreciates everything that anyone does for him.

I remember when he had uncontrolled seizures and we thought he had another stroke.

His best friend Jake and his dad Angelo held him up and walked him into the school so he could attend class. In order to keep that second health insurance he had to be a fulltime student. At that time he was recovering from loss of a visual field and could barely walk.
Time doesnt stop when a loved one is ill .



On a happier note the cat dog and guinea pig are also very glad he's home.

We are a close bunch and miss each other.

I used to worry about the way the house looks etc. Ha HA life is too short to be so concerned with such things.

Most of the kids that come thru here remember the good food ,the laughs and fact that we care about them all.


My previous blog was intense . Sickle Cell is an intense subject.

You know what helps humor!

My husband can make a bad situation seem good. He has the abiltiy to make you laugh at the some of the darnest hours.
Marqus thinks he should do voice over for cartoons and I agree.



Here is the good news!!! This time last year Marqus collasped with another episode of acute chest syndrome.(thats when sickle cells block circulation to the lungs).

The treatment for this is a total volume exchange of the blood. He has had his blood exchanged 4 times and been on a ventilator(breathing machine) once.

This year we were a direct admit into the hospital he stayed less than a month and his port is not infected YEAH!!!
I am so grateful for every minute of everyday.


Remind me to blog about his 3rd birthday and the blow up plastic bithrday cake.



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