Tuesday, December 1, 2015

Jewelry for a cause!

FOR EVERY ITEM PURCHASED $10 $20 IS DONATED TO THE ASSOCIATED CAUSE. $1,879,090 raised to date for many causes From www.bravelets.com
Visit the web site their is still time for double donation from each bravelet purchase to go to your charity.
We purchased for Brave Hearts our therapeutic riding stable.
Let's see Sickle Cell here soon.
www.bravelets.com


SICK CELLS STRONG HEART
Story by Francesca Valentine on Dec 01, 2015
Even though the title of his documentary is Sick Cells you would never know that his
condition Sickle Cell Anemia has waged a war on his body. His heart and soul are bigger than life and despite irreversible damage , excruciating pain and days where he may wonder about the next sunrise Marqus always has a kind word , a considerate thought , a smile and faith. He is my definition of Be Brave. He recently had to scratch the Special Olympics with Brave Hearts our therapeutic riding facility. While he was disappointed he was not sad because he was able to see another birthday after life threatening complications this July.
Even with painful open non healing lower leg wounds I will wake in the early am to find that he has went downstairs and put a water bottle at my bedside. He walks his therapy dogs no matter what plus straps on his Oxygen pack and heads out to dog training classes.
His dream is to finish his documentary not just for himself but for the Angels that have gone before him and to raise awareness.
During the last few months his sister has taken the reins to help him.
None of us were ready in July to be in this world without our Marqus . He is a gift .
My husband and I have walked the hospital floors for years managed all the treatments , the blood transfusion, medical appointments , surgeries , medications , bills and even a 2013 flood (that left him with non healing wounds so far to date of 2 years) and a very broken house we can barely keep and none of that can compare to agony we felt wondering if he would pull though this last crises.
Please know his story is that of strength , faith , love , the will to live , concern for others and the desire to honor those that have died. The daily struggle to keep up is small in comparison to our son's inner strength and for that we know he is BRAVE.
I plan to wear my bracelet to remind me in the middle of the night when my mind listens to the rhythmic sound of the O2 concentrator that its ok to fall asleep because
we have to keep the faith that the sun rises on us all in the morning.
A cure is evolving new treatments are hopeful I will Be Brave for our family.

https://www.bravelets.com/ 

Thursday, November 26, 2015

Momma Fran: daily update, good morning sickle cell family

Good Morning Sickle Cell family
I hope this day is finding warm with less pain and a big appetite. If you happen to be in the hospital don't be discouraged.
It's still Thanksgiving because the care and treatment you need is happening.
Parents we've been there turning hospital rooms into holiday central.
People make the holiday not TV ads etc.

We even made our own holidays.
On the dates we wanted.
Couple years ago after our flood and when Marqus got back out the hospital
We a Valentines Day tree and presents!
Somehow this season can generate floods of emotion we are bombarded
By ads to spend buy shop
We are told we have to be happy or have
Plenty of things.
Personally I chose people over stuff
Some of my best "things " are those macaroni ornaments my kids made light years ago.
If your in the hospital and the pain is not too bad don't forget to use those little Med cups to make bells.
Marqus used to make tongue blade super heroes.
And he actually got into soap and shave cream one time while I wasn't there.
Oops kind of a mess
Don't forget to make the biggest paper chain you can and stretch it all the way across your room.
The tech savvy crowd can use face time.
And you can dance while laying in bed ...really try it It will work.
Ok so I have a question.
What brings you joy?
Have a blessed Thanksgiving
On whatever day you chose for it to be.
We are strong.
Love you all
-Momma Fran Valentine

Wednesday, November 18, 2015

Mama Fran: daily update

Good Morning!!! It will be back to therapy riding this Saturday yeah.
The slice of heaven at Bravehearts.
Try to keep your chin up when the 3pm doctor appointment doesn't happen until 5 pm. The cardiac appointment went well heart lungs sounded great so it was worth the wait.
Slowly and steadily returning to living.
Have an awesome day warriors.👍🏽🍓🍌🍲🍎 eat well drink water stay strong.

Friday, November 13, 2015

Phot: PICC line is out!

PICC line out this week at Edward Cancer center. So Happy.
Peripherally inserted central catether

Sunday, November 8, 2015

More Cider and Sickle Cell success!!!

More Cider and Sickle Cell success!!! Yummy cake pop makers. Everyone's efforts to bring Christina's vision for a fall fundraiser to happen in 3 weeks are a true testimony to team work and community.Thank You Family Video! Thank you to all for planning , calling , cooking , donating , hopping a plane in an out in 24 hrs, taping , painting, store running , brain storming!!! Wow. GIANT Thank You to those that stopped listened shared their story, had their faces painted, sipped some cider and showed support. - Mama Fran Valentine











Cider and Sickle Cell fundraiser!!!!

Cider and Sickle Cell fundraiser!!!! Thank you everyone !


First fundraiser was awesome!