Learn more about the Sickle Cell trait!

Ever wanted to know more about Sickle Cell Trait or wondered if having Sickle Cell Trait is something to be concerned about? Read the National Heart Lung and Blood Institute's questions and answers page about SCD Trait.http://www.nhlbi.nih.gov/news/spotlight/fact-sheet/questions-and-answers-about-sickle-cell-trait

Shared Post: Remembering Uncle Johnnie

http://www.huffingtonpost.com/radio-rookies/remembering-uncle-johnnie_b_1875439.html

Photo: Occupy Sickle Cell Anemia!

SickleSTRONG, Inc

Photo: Throwback

Future film maker, world traveler, Hair stylist(didn't see that coming), and future bar owner. Me, Kevin,my cousins Benji, and Brandon.

Message from Marqus: 9/7/2012

Hello sickcell fans I wanted to post this message to keep you all up to date. It takes a lot to make a film and this film like others has had its up and downs. I started this as a small project and it grew into its own thing. I care a lot about the sickle cell community and other sicklers and there family's struggle I want to make this film as educational and productive so I can make a difference in as many ways as I can. After a few bouts with my health along with a few production set backs the first director and I are working on getting the funds to finish this film. To everyone who has been following this films production I will not let the thousands of sicklers across the world down. To all sicklers Sick cells is not just my film it is also all of yours. Thank you all for your support Marqus Valentine

Momma Fran: Update on Marqus

Hello everyone This is Marqus' mom . I just wanted to add an update. Marqus sister Ashley is our connection in the UK. Many of the problems and struggles we find here are also across the pond. We will keep you updated . Imagine a true world wide voice as one to communicate our struggle , bring it to the forefront and gain the care all persons with SCA deserve. Break down barriers , end the misconceptions , the stereotypes, and focus on equal healthcare, respect and a cure. No more castaways!! Make your voices loud clear and united. Marqus lost all state of Illinois services this month. The same is happening across the pond.
My apologies for not keeping up with my blog. I am a registered nurse for 32 years and have plenty to share . I will continue to move forward with my blog it is just taking longer than planned. Ashley is currently working on her Masters in Social Research at the University of Abeerdeen in Scotland. This gives her the opprotunity to connect with SCA pprograms and folks in the UK.
Our many thanks to everyone for posting and thinking of us. We are truly blessed to be able to be part of this mission.

From Island to Village

Before the creation of Sick Cells, living and working daily with a chronic illness felt like being shipwrecked on a deserted island. Each time there was an episode of pain or a crisis, came the need for a short physiology lesson as to why Marqus was suffering.  


A person with a more familiar disease just has to give a one word title, and the message is received. Sickle Cell Anemia is still an Island. It stays alone in stereotypes and is still burdened with "Oh, I've heard of that, but I didn't know it did all that."  


The documentary is slowly but surely expanding our Village. The disease needs the help of the world! My daughter, Ashley, is doing her Master's thesis about Sickle Cell Disease, and is our international link.



Social isolation keeps you on that island. Please join our discussion and help us create the Village that needs to grow into a city and flow into the world. 


Release that hidden pain and suffering! Shout out! Use the Social Media links and comments and talk to us! 


We are spreading and with this mission there will no longer be castaways!!! 

Thank you for listening!

Luv,
Fran