Marqus turned 32 yrs old. Thank you GOD!!!
The last time we had a hospital family party was 29 years ago when he was 3!
This time he was able to eat the cake!!!
We are so grateful!!!
Thank you for coming out to the hospital. He was truly surprised!!!
Sunday, July 26, 2015
Thursday, July 23, 2015
Momma Fran: daily update 7/23/2015
My daughter flew in a couple of days ago. She was able to cancel her vacation when her brother went into crisis
I'm so glad she's here.
She makes us remember to eat lots of vegetables and take care of ourselves
She reminds us that we are no good to anyone if we fall apart. She tells her dad eat less sugar ! And reminds me to walk more and stretch.
My husband complains but eats when she cooks even if he hates onions !
I'm so glad she's here.
She makes us remember to eat lots of vegetables and take care of ourselves
She reminds us that we are no good to anyone if we fall apart. She tells her dad eat less sugar ! And reminds me to walk more and stretch.
My husband complains but eats when she cooks even if he hates onions !
She even came up with a Broadway musical song for Marqus to make him laugh his way thru the deep breathing and coughing.
Her friends from DC sent make the most beautiful flowers. Makes the room feel sunny!!
Thank you so much
I know it was hard to be so far away
On vacation and hear that Marqus had went into one of the worst crisis ever.
He keep saying stay on your vacation but she come hear him and all the ICU background noise and there was no way she wasn't coming home.
His older brother was home for 5 days too.
He works outside the USA so it was good everyone was here.
All Ashley's homemade food will help him heal faster.
Also her jokes and funny songs.
She has that quality from her dad.
Marqus aunts friends and cousins came by he was very happy.
I'm pretty stressed out and beat down so
I am so grateful for family and friends.
Good night everyone. I will keep updates coming.
He is in room 422 Edwards Hospital
Naperville
Her friends from DC sent make the most beautiful flowers. Makes the room feel sunny!!
Thank you so much
I know it was hard to be so far away
On vacation and hear that Marqus had went into one of the worst crisis ever.
He keep saying stay on your vacation but she come hear him and all the ICU background noise and there was no way she wasn't coming home.
His older brother was home for 5 days too.
He works outside the USA so it was good everyone was here.
All Ashley's homemade food will help him heal faster.
Also her jokes and funny songs.
She has that quality from her dad.
Marqus aunts friends and cousins came by he was very happy.
I'm pretty stressed out and beat down so
I am so grateful for family and friends.
Good night everyone. I will keep updates coming.
He is in room 422 Edwards Hospital
Naperville
Video: Trinity & Kaleb
Trinity giving Kaleb Marqus nephew a body wag. Lol!!
https://www.facebook.com/sickcells/videos/10155911098210171/
https://www.facebook.com/sickcells/videos/10155911098210171/
Momma Fran: Marqus is out of the ICU
Hello family and friends
Marqus is now on out of ICU!!
He is still in pain but it's more manageable.
His left hip is painful from the AVN
avascular necrosis.
Marqus is now on out of ICU!!
He is still in pain but it's more manageable.
His left hip is painful from the AVN
avascular necrosis.
Saturday July 25th is his birthday he will be 32 years old.
Often when we discuss a person we think of their accomplishments such as home ,job ,degrees etc.
Marqus has spent 31 yrs living with A disease that heightens the thoughts of a person's mortality.
I remember once when the kids were small and I had just completed a complicated ER shift they told me I didn't smile anymore.
My kids now adults shared their stories of taking turns to stay awake when I worked the night shift to make sure I came home.
To this day Marqus will care for himself
Even sometimes in distress so as not to wake me. He doesn't want my asthma to flare up.
My son with a condition whose pain and
Damage to the organs is unthinkable is always concerned for others.
We tackle this disease head on
This time I'm reaching out for support
We never complain and just keep going and going so much so that sometimes we forget people do care .
Somewhere in the midst of working to stay alive we fit in living.
Our IV pole makes and excellent clothes rack to dry hand washables.
The medications and supplies have grown quite a bit so I made a spread sheet. We have more medical supplies than furniture that cup is more than half full !!! We are blessed that Marqus has access to quality care.
The hyperbaric boot and concentrator sound like a ventilator pretty good sound effects to play video games to !
And the scooter will be excellent for running the dogs LOL my husband was driving it up and down the street and I do admit it looked awfully funny. No more missed the arboretum , national mall , comic con etc for difficulty walking.
Everyone please know that your support is appreciated !!
Chronic illness can render anyone lonely
Because they are not out and about doing daily things.
The hospital becomes like family and
Medical care to stay alive is top priority.
Health can not be taken for granted
If nothing else is learned from Marqus suffering please be good to your body ,mind and soul .Be sure to stop and relish the small things.
Often I'm bogged down by what I can't
Change its too much and can suck the joy right from my soul. That can not happen. I'm working on staying positive
Even in the face of catastrophe .
My grandson asked me why his Uncle Marqus was so sick
I explained about the sickle cells blocking all of his blood vessels stopping circulation.
He answered in the most matter of fact way.
"Grandma tell them to just take the cells away"
One day that will be the case.
Often when we discuss a person we think of their accomplishments such as home ,job ,degrees etc.
Marqus has spent 31 yrs living with A disease that heightens the thoughts of a person's mortality.
I remember once when the kids were small and I had just completed a complicated ER shift they told me I didn't smile anymore.
My kids now adults shared their stories of taking turns to stay awake when I worked the night shift to make sure I came home.
To this day Marqus will care for himself
Even sometimes in distress so as not to wake me. He doesn't want my asthma to flare up.
My son with a condition whose pain and
Damage to the organs is unthinkable is always concerned for others.
We tackle this disease head on
This time I'm reaching out for support
We never complain and just keep going and going so much so that sometimes we forget people do care .
Somewhere in the midst of working to stay alive we fit in living.
Our IV pole makes and excellent clothes rack to dry hand washables.
The medications and supplies have grown quite a bit so I made a spread sheet. We have more medical supplies than furniture that cup is more than half full !!! We are blessed that Marqus has access to quality care.
The hyperbaric boot and concentrator sound like a ventilator pretty good sound effects to play video games to !
And the scooter will be excellent for running the dogs LOL my husband was driving it up and down the street and I do admit it looked awfully funny. No more missed the arboretum , national mall , comic con etc for difficulty walking.
Everyone please know that your support is appreciated !!
Chronic illness can render anyone lonely
Because they are not out and about doing daily things.
The hospital becomes like family and
Medical care to stay alive is top priority.
Health can not be taken for granted
If nothing else is learned from Marqus suffering please be good to your body ,mind and soul .Be sure to stop and relish the small things.
Often I'm bogged down by what I can't
Change its too much and can suck the joy right from my soul. That can not happen. I'm working on staying positive
Even in the face of catastrophe .
My grandson asked me why his Uncle Marqus was so sick
I explained about the sickle cells blocking all of his blood vessels stopping circulation.
He answered in the most matter of fact way.
"Grandma tell them to just take the cells away"
One day that will be the case.
Monday, July 20, 2015
Momma Fran: Hello Monday
Hello Monday update
He is now in a regular room on telemetry
He used a walker and walked a small distance with protected weight bearing
Last nights transfusions helped a lot.
Now looking towards planning for home
Thank you everyone and please keep following.
He is now in a regular room on telemetry
He used a walker and walked a small distance with protected weight bearing
Last nights transfusions helped a lot.
Now looking towards planning for home
Thank you everyone and please keep following.
Photo: Onyx is waiting for Marqus
Onyx is waiting for Marqus to get better and bring the cookies carrots
apples and any other goodie she can find in his pocket!!!!!!!!
Sunday, July 19, 2015
Momma Fran: daily update 7/19/2015
Hello
Better day today !!! He will get another transfusion. Fevers are improving
Still in ICU but less pain.
Thank you God Thank you to everyone for prayers well wishes love and concern.
Better day today !!! He will get another transfusion. Fevers are improving
Still in ICU but less pain.
Thank you God Thank you to everyone for prayers well wishes love and concern.
Waiting for official results of WBC scan.
Will continue daily updates
Please get some sunshine today!
Will continue daily updates
Please get some sunshine today!
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