Momma Fran: Update on Marqus

Hello everyone This is Marqus' mom . I just wanted to add an update. Marqus sister Ashley is our connection in the UK. Many of the problems and struggles we find here are also across the pond. We will keep you updated . Imagine a true world wide voice as one to communicate our struggle , bring it to the forefront and gain the care all persons with SCA deserve. Break down barriers , end the misconceptions , the stereotypes, and focus on equal healthcare, respect and a cure. No more castaways!! Make your voices loud clear and united. Marqus lost all state of Illinois services this month. The same is happening across the pond.
My apologies for not keeping up with my blog. I am a registered nurse for 32 years and have plenty to share . I will continue to move forward with my blog it is just taking longer than planned. Ashley is currently working on her Masters in Social Research at the University of Abeerdeen in Scotland. This gives her the opprotunity to connect with SCA pprograms and folks in the UK.
Our many thanks to everyone for posting and thinking of us. We are truly blessed to be able to be part of this mission.